Aspergers Syndrome

It is very important in receiving a proper diagnosis to have as much information as possible.   Even after they have received a diagnosis it is a good idea to keep a journal or update a list of actions, symptoms, daily struggles, improvements, etc.  This especially is helpful when you make changes such as medications, start a new school year, move, or other life changes. 

It is also important to keep a copy of all information you receive from anyone in regards to your childs condition.  This might include doctors and school officials.  You may actually be the only person who has ALL this information in one place and may need them for future reference.  If you do not currently have everything on your childs medical or educational history request it.  It is your legal right to have their information. 

Start a file in a filing cabinet or have a binder that has EVERYTHING in it.  Shot records, medications used and the dates.  This might even include doctors bills and insurance claims.  Also include I.E.P. records and accomodations from the school.   You might also start a file that includes names and references of doctors, support groups, books, and other resources you have received that you may not need or use now but might in the future. 

It also would be a good idea to get your Aspergers child to start doing their own documenting.  Give them a notebook to journal for their Aspergers.   We gave our daughter a “feelings journal” which was just a notebook that she had with her at school.  She uses it to write down what she is having a problem with that day.  It could be a sensory issue, being bullied, having a headache, or even just being frustrated with school work.  We discuss these with her to get a better idea of what she is feeling and how we can help her as well as discussing issues with her teachers.  We try to address repetative issues with her doctor.