Aspergers Syndrome

Understanding Aspergers Syndrome

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Dec 30 2008

Aspergers Research Projects

Since Aspergers is still being researched and explored there are several research projects that need participants.  Here are several that I have found through internet research that may still be looking for participation.  Contact them for more information about their project.  Check my blog for more research projects as I find them:

1.  New York University: Steinhardt School of Education Department of Applied Psychology is looking for parents of children ages 5-16 years old who have been identified as having Aspergers Syndrome.  This is part of a doctoral dissertation for Jeanne Angus.  There is an online survey about parenting experiences.  Link: : www.jeanneangus.info  (password: Asperger) or try calling them at (646) 698-3041 or email at  j.angus@nyu.edu

2.  Columbia University Programs in Occupational Therapy are conduting an online survey of parents’ perceptions of their understanding Aspergers, sibling relationships and need for support services.  This research needs siblings of children diagnosed with Aspergers syndrome.  It asks questions relating to siblings’ adjustment and support and their relationship with their AS sibling.  They are seeking parents who have an AS child who has atleast one sibling both over the age of 6.  Link:   http://www.columbia.edu/~ch2277/ or emailing  eir12@columbia.edu or call at (212) 342-2743

3.  Hofstra University, Hempstead, New York Clinical/School Psychology Ph.D. Program  is looking for parents of children diagnosed with Autism, Asperger’s Syndrome, or Pervasive Developmental Disorder (PDD).  This is an online questionaire examining parental experences and opinions of educational placments for children with these disorders.   Link:  www.autismspectrumsurvey.org or email Dawn Middleton at dawnmiddleton@yahoo.com

4.  The UC Davis M.I.N.D. Institute’s clinical research program is looking for children from birth to adulthood to participate in a study.  They are seeking participants with neurodevelopmental disorders, developmental delays, or typical development.  Some financial compensation is offered for some studies.   University of Cambridge - UK Autism Research Centre is looking for adults or children diagnosed with Aspergers Syndrome to be part of a new genes project along with their siblings.  This involves collecting a DNA sample and a questionaire from individuals with Aspergers Syndrome and their bological siblings.  This research may enable them to identify specific genes with AS, possibly lead to earlier diagosis and better understanding the condition.  Contact  Meridith Brandt at (916) 703-0320

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